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You are not the only one I have heard having issues. I hope Dawn sees this and has an idea, for I have not had any issues.
Here is the link you can copy and paste into your browser when you have facebook open: http://www.facebook.com/home.php?#!/pages/Wake-Forest-NC/CHERUBS-Congenital-Diaphragmatic-Hernia-Research-Awareness-and-Support/37214172005?ref=ts
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
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