About a month ago I read a blog of a two or three year old african american CDH survivor .... I am trying to remember where I saw it! I will let you know if I can find it again.
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About a month ago I read a blog of a two or three year old african american CDH survivor .... I am trying to remember where I saw it! I will let you know if I can find it again.
Mom to Dakota Tenney- born 12-25-08 (RCDH). Diagnosed at 29 weeks. Born 7 weeks and 2 days early (32 weeks and 5 days). She is my Christmas gift and I am never giving her back. ECMO three days. Surgery on Day 13. Home on cannula oxygen 2-25-2009. Off oxygen 3-31-2009. No feeding tube yet *knock on wood*. Hard to feed and still a skinny little girl- but we are working on it!
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