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Thread: In Seek of State Representatives for CHERUBS!!!

  1. #1

    In Seek of State Representatives for CHERUBS!!!

    CHERUBS is the world's first, oldest, and largest CDH non-profit organization. CHERUBS was created to make sure that no family endures Congenital Diaphragmatic Hernia without support or accurate information. Our Board of Directors and Parent Advisory Board includes CDH parents, grandparents, survivors, nurses, doctors and the world's top CDH researchers. CHERUBS is run solely by volunteers and donations.

    Would you like to help us make a difference? At this time, CHERUBS is seeking state representatives!! We need people like you to donate time, energy, and experience to help other families affected by CDH. As a state representative you would be contacting families in your state, finding hospital angels for hospitals within your state, planning a state get together for CDH families, offering support to others, and raising CDH awareness. This is just a few of the responsibilities of what a state representative does for CHERUBS. Our goal is to have two state representatives per state.

    No one knows what life is like with a child born with CDH like the other parents who have walked this path. Together, we will be able to help many CDH families, for no family should have to go down this path alone. Our volunteers say they feel rewarded many times over for the help they provide in making a difference in the lives of others.

    Please visit our website at http://www.cherubs-cdh.org/volunteer/index.php, to find out more about how you can help CHERUBS. From there if you click on how to volunteer, it will take you to the 5 easy steps to volunteer. If you are interested, please let me know and I will answer any questions you may have. My email is volunteer@cherubs-cdh.org.

    The following states need representatives:
    Alabama (co-rep. needed)
    Alaska
    Arizona
    Arkansas
    California (co-rep. needed)
    Connecticut
    Delaware (co-rep. needed)
    Florida (co-rep. needed)
    Georgia
    Hawaii
    Iowa
    Kansas
    Kentucky
    Maine
    Maryland (co-rep. needed)
    Massachusetts (co-rep. needed)
    Michigan
    Minnesota
    Missourit
    Montana
    New Hampshire
    New Jersey (co-rep. needed)
    New Mexico
    North Carolina (co-rep. needed)
    North Dakota
    Ohio (co-rep. needed)
    Rhode Island (co-rep. needed)
    South Carolina
    South Dakota
    Tennessee
    Utah (co-rep. needed)
    West Virginia
    Wisconsin (co-rep needed)
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #2
    Being a State or International Rep is a HUGE honor because you get to walk down the CDH path with families and be a support for them during the hardest times in their lives and often, you are the only person who truly understands what they are going through. Being an active Rep will change your life in such a positive way.... you will be such a blessing to these families and they will be such a blessing to you.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  3. #3
    I'll be sending my paperwork to you Dawn to be a Rep. for MI hopefully tomorrow!!

    Alyssa~ 7/19/2004; LCDH- ECMO 11 days (VV 5 days)- (VA 6 days)-To date, the only Double ECMO Case at Helen DeVos Children's Hospital, Vent 19 days- Osc. Vent 1 day- Jet Vent 1 day- Oxygen 20 days. 64 days in the NICU, came home on NG tube, continuous drip feeds. 02/28/2005 Fundoplication and G-tube placed.

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