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Thread: Seattle, WA Parade on April 19th

  1. #1

    Seattle, WA Parade on April 19th

    Seattle, WA Parade

    On Facebook - https://www.facebook.com/events/245684502229317/
    Register on Eventbrite - http://cdhawarenessday-2013seattle.eventbrite.com/
    Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
    50% of money raised will be donated to Seattle Children's Hospital for CDH Research
    Contact Christina with any questions about this event
    Attached Images Attached Images
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Look forward to seeing pictures from the day!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  3. #3
    Register for Event, Purchase a Sponsorship and Order your shirt by March 31st! 50% of proceeds through this link will go to towards CDH Research at Seattle Childrens Hospital!

    To Register for Event, Purchase a Sponsorship and Order your TShirt by March 31'st,Click on Link Below, make sure to CLICK ON JOIN NOW and Purchase Immediately (once you register, you cannot go back to the purchase page).

    If you are wanting to make a very appreciated Donation, Click on link below, click on the Teams Tab, click on Seattle parade of CHERUBS (view), Click on Any of the participants that have a view page link and then click on the Donate Button and fill out necessary info.
    Thank You Everyone!!!
    http://www.facebook.com/l.php?u=http...13&h=hAQEYQ3Yi

    Lets use the FirstGiving Page to keep track of All Participants and Non Participants, T-Shirt Purchases, Sponsorship Purchases, Donations, etc. Keep Track of the Event changes via the Facebook Event Page
    Im looking forward to meeting several New Families This Year!! Lets hope for Sunshine!!!
    If you have ANY questions or comments, please feel free to contact me at ANY time by email: Washington@cherubs-cdh.org or Cell: 425-922-2828
    Thank You!!
    My name is Christina, I am Mother to 4 children. My 3rd child, Hunter was born, full term and survived LCDH(Left Sided Congenital Diaphragmatic Hernia), ECMO (extracorporeal membrane oxygenation Initial replacement of missing diaphragm with synthetic patch,Breathing Machines,Stroke,No Pericardial Sack,RSV,Repair to diaphragm Patch,Bowel Blockage,Bowel Reconstruction,Months of IV antibiotics,Lovenox Shots to dissolve blood clot in heart,Low Weight and Size,Still eating by G-Tube and Physical, Occupational and Feeding Therapy Daily.Through all of this, he looks at me and brightens every room with his smile! Overall,Hunter spent 45 days in NICU,several other hospital stays and approximately 10 surgeries.He has 2 Big Sisters,Danielle 20 (Dating a CDH Survivor),Codee 16,and a baby Brother,Hayden 2. Hunter's condition,in a weird way, has made us stronger as a family and has taught us lessons we will never forget! I wanted other families to know that there is someone here for them, someone that they can depend on and a little boy that can provide some light in the darkness of CDH.
    Christina Smith-Stembler
    Washington State CHERUBS Rep/ Oregon CHERUBS Co-Rep/ Mother to Hunter, LCDH Survivor
    washington@cherubs-cdh.org
    www.cdhsupport.org
    425-922-2828
    www.babyhomepages.net/stembler
    https://www.facebook.com/#!/christina.s.stembler

  4. #4
    Hope you have a wonderful day. Can't wait to hear all about it.
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

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