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Thread: CHERUBS Medical Expert Series: CDH & Vaccinations (Oct 1-7, 2013)

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  1. #1
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    as the parent of a now adult 22 yearold surviour what about the guardisil shot for girls does she need it or not
    janice crawford mother to angel crawford right sided cdh numerous feeding issues 1 additional repair at 1 club footed develepmental issues never on chart for weight but doing very well now at 24 years old expecting her 1st child

  2. #2
    With the large amounts of blood products some of our Cherubs sometimes need (especially during ECMO) and the frequent in & out of the hospital, are Hepatitis A and B vaccines warranted & if so when?

    Shelly
    Shelly Moore
    CHERUBS Oregon Representative and Oregon Hospital Angel
    CHERUBS Prayer Committee Member
    CHERUBS Parental Advisory Board Member (2013-2015)
    Email: oregon@cherubs-cdh.org
    Facebook: http://www.facebook.com/Teckiemom

    Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.

    Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.

    Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.

    Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.

    Remembering Jayden - A Family's Journey in Coping with Loss to CDH
    http://rememberingjayden.blogspot.com/

    Jayden's CDH Story 2/19/10 - 3/14/10
    http://www.youtube.com/watch?v=0fKsAsMS_ZA

  3. #3
    Good question. Especially for children who are exposed to blood products, and even those who aren't, Hepatitis B vaccine is definitely recommended. Hep B is a 3-dose series that can be started as soon as the child is born. Hepatitis A is spread through food and fecal to oral contact. It is also recommended to get the Hep A 2-dose series after age 1 year.

    Quote Originally Posted by ShellyMoore View Post
    With the large amounts of blood products some of our Cherubs sometimes need (especially during ECMO) and the frequent in & out of the hospital, are Hepatitis A and B vaccines warranted & if so when?

    Shelly

  4. #4
    Hi,
    The HPV vaccine is recommended for females from ages 11-26, so your daughter is in that age range. Gardasil is also indicated for males up to age 21.

    Quote Originally Posted by jcrawford View Post
    as the parent of a now adult 22 yearold surviour what about the guardisil shot for girls does she need it or not

  5. #5

    Adult immunization recommendations.

    Here is a link to the CDC's recommended vaccines for adults. Figure 2 "Recommended vaccinations indicated for adults based on medical and other indications" has a column for "Chronic Lung Disease", which would apply to many Cherubs.

    http://www.cdc.gov/mmwr/preview/mmwrhtml/su6201a3.htm

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