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BREAKING CDH NEWS:
On April 7, 2014, Senator Jeff Sessions introduced S.Res. 414: A resolution designating April 2014 as “National Congenital Diaphragmatic Hernia Awareness Month”.
It passed UNANIMOUSLY yesterday!!!!! Thank you to Sen. Sessions and Co-Sponsor Sen. Ben Cardin for all they do for our children!
https://www.govtrack.us/congress/bills/113/sres414
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
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