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Hi Marilu!
It is good to hear from you! We need an update on Juan!
Do you remember sending in your story? You can post your son's story here on the forums by last name, first name here in this section. Or you can email it in to the CPAB at cpab@cherubs-cdh.org and we can get it to the right person.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Thanks Tracy. I thought I did send one. But will start working on a new one as soon as I can. I really hope I can remember all the details 😛. Thanks again!
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