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https://www.facebook.com/groups/survivorscdhfamilies/
I will look into Louise. I am not sure what is going on. I need to try from my husband's facebook account and see what happens (since he is not a member of the group yet)...not sure. Will let you know.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
That link worked. I also received your invite and am just waiting approval. Thank you very much
From Wasaga Beach, ON, Canada and the very proud mother to Carson, Marek and CHERUB Sasha. Sasha was born May 27th 2014 and came home from SickKids hospital September 3rd 2014. She had a bumpy road to recovery but has come home after receiving a fundoplication and g-tube surgery. Came home working on feeds - happy to say she is not using her g-tube anymore and it should be removed soon. Hoping to wean meds also and continue to see improvements in her gross motor skills. Very lucky, very thankful.
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