Very good question! I will see what I can find. The research going on at Baylor, DHREAMS, and Mass General are the 3 big genetic research trials going on and the easiest to find info. on. I have heard Baylor and Mass General talk, but DHREAMS has also attended CDH conferences and spoke on their research. The other ones listed are more hospital based research trials and more towards finding better treatments for CDH babies, whether it be ventilation, FETO, the repair material used, ect....

I will ask if we have details on each project though.