Thank you for sharing your story!These CDH fighters truly are amazing.....
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Thank you for sharing your story!
Heidi Forney, mom to Sean (20!) and 2 other sweet boys both older. Sean was born with LCDH, and as a result has also lost about 50% of his intestine, is depedent on tube feeds and TPN, O2 at night, AVAPS due to both kinds of apnea and CO2 retention, has severe restrictive lung disease, severe scoliosis, SVC syndrome with 5 stents, Aspergers, diagnosed with pulmonary hypertension at age 17, adores and admires all animals especially wolves, hyenas and spiders, hopes to someday be a an animal videographer, and will talk your ear off if you let him about animal endangerment, OR the civil war.I am a volunteer for CHERUBS as a Hospital Angel in Idaho (Boise Area)
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