I have been reading this thread and re-reading it.
Today I called Meaghan and is amazing.

She is going to send us information and a blood kit for when we have Shelby's blood drawn again and I hope it is no time soon.
I asked her if they were interested in other families having CDH babies and she was like YES.

Her number again-617-726-0828. If you are interested- DEFINETLY call her and she will explain everything.
They are doing AMAZING things and I am so happy this thread is here.
This can do so much for reasearch on CDH.