I just wanted to say that we are taking part in the UMass study. When Jack was born in August 2008 we sent them cord blood etc. The main contact person there (Meaghan Russull) is amazing. She's incredibly organized and we've called her a few times just for CDH related advice. I highly recommend this study to others.

Vicki
mom to Jack, LCDH/ECMO, 8/20/07