Hi Anjelica, welcome to CHERUBS. I am so sorry you are on this journey with CDH. Having bilateral CDH, it is harder for them to overcome. We do have survivors out there. Where are you doctoring at? Are you at a facility very experienced in CDH care? Is the diagnosis of a bilateral CDH coming after a fetal MRI or just the ultrasounds?

It is so hard to compare two cherubs, for they are truly like snowflakes when it comes to their care. Each case has to be handled differently, for what works for one, will not work for the next. I have seen babies with very severe cases of CDH have little to no lasting complications and I have seen babies with a mild case of CDH, struggle to survive and have lasting health complications. Babies born with CDH can have an array of health complications. Have you checked out our website too, www.cherubs-cdh.org, there is more info. to read there too. We do have a facebook page that is more active you could post questions to, for sometimes our forums are not as active, https://www.facebook.com/cdhsupport/.