I would be terrified if I were you. How are things with your daughter now? I have a 21 year old right-sided survivor. She has also had some health issues, but she has been fairly healthy until this summer. We found out in July that she was very anemic. Since then, she has been on mega doses of iron. We have brought her numbers back up, but if she reduces the iron, her iron stores begin to fall. I am concerned that she is bleeding somewhere in her GI tract. We know that she has had a loop of bowel that sometimes migrates up on chest xrays, but when she was little, her surgeon always told us not to try to fix anything that isn't broken. In other words, if her body is functioning, leave it alone. We have heeded that advice, but I am concerned now. We found a GI doctor, and he did a scope down into her stomach and a bit of small intestine. He found a hiatal hernia. He just seems to be so dismissive of her history and talks about "normal" 20 year olds. It drives me crazy! We haven't been normal since day 1. His advice is to just let her take iron, but I would like to find the source of the problem. He suggests a colonoscopy, but I am afraid that the air pressure from that could be too much on her diaphragm and cause her to really reherniate. I wish so much that we had doctors who took an interest in our children as they age out of pediatrics. I am afraid as they grow older, these unique problems will continue, and we just don't seem to have any doctors who care enough to really listen, consider the options, and help find solutions.