Ok tonight I was watching Nancy Grace, I happen to love her. For those that don't know she just gave birth to twins that were 2 & 5 lbs., spent time in the NICU & then she became very ill and was hospitilized. She is looking for "extraordinary parents"! I found it interesting but the web site is www.cnn.com/nancygrace....maybe she would be interested in the strength it takes for CDH parents?!?! Worth a shot???