Some great photos of this amazing event can be found in our photo albums!
http://cdhsupport.org/members/album_cat.php?cat_id=251
Stay Connected 
Stay Connected
Some great photos of this amazing event can be found in our photo albums!
http://cdhsupport.org/members/album_cat.php?cat_id=251
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Very good picutres...so much fun!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Awww, makes me miss y'all! We had such a great time and you were all so wonderful
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
Looks like it was amazing!!! Sorry we missed out.
Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
So much fun!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
This was an amazing experience & I miss ALL OF YOU SO MUCH !!
Great pics...
~Jenn~ proud mommy to Adrian; LCDH diagnosed in utero- repair at 10 days old while on ECMO. 11 days on ECMO- 12 days on the Vent and 36 days with oxygen. 5 weeks at Children's Boston and another 5 weeks for recovery in our local hospital Hasbro. Spent 72 days away from home. At 5 months old AD had a stroke due to ECMO; no complications with that- went home after 7 days with meds. Currently a happy 1-year-old; when you look at him you wouldn't know all this happened... : ) Also proud mom to 6-year-old Damian http://i45.photobucket.com/albums/f8...iveraSmall.jpg
It was amazing to meet you all!
Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)
Great pics!
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
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