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My family participated in this study at the confernce last June. We were told we would get news (whatver that means / results?) in about three months. It's been well past that so I was wondering if anyone has heard anything about their samples for this study? Will they ever contact us or no? I'm really hoping no news is good news.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
We have been involved with the Boston Children's Hospital Study
http://www.massgeneral.org/children/...b/cdh/faq.aspx
with Dr. Barbara Pober and Meaghan K Russell GREAT Folks
In HIS Service Debbie & Gerry Freed [Gerald_Freed@hotmail.com] [http://reocities.com/cdh_freed_family/]
We did that study too.
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
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