Pamela-mom to Sawyer 6 1/2 yrs. LCDH repair @ 5 days- PPH-resolved-oscillating vent 12 days- reg vent 7. Home @ 30 days- no O2- breastfeeding- doing much better than expected. Dx with spastic di/quadriplegia cerebral palsy @ 17 months. Has reherniated 2x's. 1st-hiatal hernia (repaired @ 25months) 2nd-paraesophageal hiatal hernia (current) needs surgery to repair- but we are waiting on it!! Has 7 bros and sisters who adore him. Nonverbal- somewhat ambulatory. Very naughty- but that's the fight in him shining through!!!!