Hello everyone, my name is Stephanie and I am 23 years old and my family is from Cape Cod, MA. my baby girl was born September 23, 2017 weighing 5lbs 6oz with a right sided CDH, that was also a "sac-type". 3 days after her birth she was required to go on ECMO but came off of it about 2 weeks later. she is having some complications including right sided cardiac hypertrophy and pyloric stenosis. she had to have a surgery yesterday to correct the pyloric stenosis and place a G tube, making this her second surgery in her short 1 month of life so far. I am so grateful that we live close to some of the greatest hospitals in the country. the doctors here are projecting her to be home by Christmas but it seems so far awaymy husband, our 2 year old, 7 year old, and myself are anxiously awaiting the day we can finally bring her home
Stay Connected 
Reply With Quote