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Thread: CDH Awareness

  1. #1

    CDH Awareness

    I thought that this was pretty cool so I had to share. When Alex and I went to Vanderbilt this past week I was wearing my CHERUBS shirt and one of the respiratory therapist (who was also an ECMO tech) noticed the shirt and began to ask questions. I explained all about CHERUBS to her and she was amazed and definitely would pass the word on to other parents of CDH babies about CHERUBS. I was caught off guard, but also was so excited to be able to tell her all about this group and hopefully be able to help other families out there. Thanks for listening, I was just so excited about the situation that I needed to share this.
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  2. #2
    That is pretty cool!

    Did you see Dr. Y?? I just adore that man.....
    Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/

  3. #3
    Actually, I had posted under the prayer request hoping that you would read it, but yes actually Dr. Y did Alex's revision surgery on his g-tube while we were there. He definitely is an absolutely remarkable man. How is Graham doing?
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg

  4. #4
    Donna, that is great! Thank you for being a wonderful advocate for awareness!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  5. #5
    Donna--This is AWESOME!!!!
    What a great way to spread CDH Awareness and let people know about CHERUBS!!!
    YOU ROCK!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

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