Do we have a list of hospital's that provide ECMO ?
I know of a few, but was just wondering, thought that information may be useful to us. If we dont have one, do you think we could somehow compose one?
Do we have a list of hospital's that provide ECMO ?
I know of a few, but was just wondering, thought that information may be useful to us. If we dont have one, do you think we could somehow compose one?
No, we don't have one, but I'm sure there's a list somewhere. I'll see what we can find - surely one of our Medical Advisors has a list.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I know that University of Michigan and Spectrum/DeVos Children's hospitals have ECMO.
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Akron Children's Hospital also has ECMO.
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
Oh, great ..
I know the University of Viriginia does, and as far as I can tell, that's the only one in VA .....
There was another CDH baby at UVA while cole was is NICU, it was on ECMO ... i often think about that family , wonder about that baby.
Didnt get to talk to the family, the mother wasnt able to be there much for some reason, so our paths never really crossed
I know Vanderbilt Childrens Hospital has ECMO
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
Children's Hospital Boston
Massachusetts General Hospital Floating Hospital for Children
Children's Hospital of Pennsylvania
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/
Sad to say some Hospital's have EMCO But, Not the ECMO Specialists.
hope this helps =)
Chicago Children's memorial Hospital
http://www.childrensmemorial.org/
Extracorporeal membrane oxygenation (ECMO)
Extracorporeal Life Support (also known as extracorporeal membrane oxygenation, ECMO) is cardiopulmonary bypass pumping done for prolonged periods of time at a child's bedside. Cardiopulmonary bypass was originally developed to allow surgery on the pediatric heart during "open heart surgery." However, we have been able to adapt the technology to support children who suffer pulmonary failure from a large variety of causes.
Children with overwhelming pneumonias, those born with severe congenital anomalies such as diaphragmatic hernia with pulmonary hypoplasia, or children who have heart failure following cardiac surgery may be candidates for ECMO support. In all of these children, ECMO circulates a child's blood so that oxygen can be supplied to the body and gaseous wastes removed, allowing time for healing for a child's damaged lungs.
These highly complex procedures are done in the Neonatal Intensive Care Unit or the Pediatric Intensive Care Unit at Children's Memorial. Staff members in the Division of Pediatric General Surgery, as well as a host of other supporting services, provide consultation. Full parental consent is sought prior to the initiation of the ECMO procedure, which generally lasts from several days to as long as three to four weeks.
Pediatric surgeons are available to families to keep them fully informed of a child's progress when undergoing this innovative but technologically demanding support. Ancillary care services and surgery are provided as necessary, and pediatric surgery maintains long-term follow-up services for all of the children who have undergone ECMO.
++++++++++++++++++++++++++++
University of Chicago Medical Center.
Donald Liu, MD, PhD
Associate Professor of Surgery and Pediatrics, Surgeon-in-Chief for the University of Chicago Comer Children's Hospital
www.uchospitals.edu/physicians/donald-liu.html
http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img