THURSDAY, JULY 24th
3:00 pm - Check in
7:00 pm - CHERUBS Pizza Party Meet & Greet - Join us for introductions!
FRIDAY, JULY 25th
8:00 am - Welcome Speech by Dawn
8:30 am - 10:00 - (Choice of) Round Table Discussions
"Dealing With Grief" or
"Dealing With Feeding Issues"
10:00 am -12:00 pm - Guest Speakers Meaghan Russell and Dr. Mauro Longoni (MassGeneral CDH Clinic, Boston, MA) will discuss Genetic Research Into CDH
12:00 pm - 1:30 pm – Lunch Break. Lunch will not be provided.
1:30 pm - 2:30 pm - (Choice of) Round Table Discussions
"Dealing with Marital Problems" or
"Dealing with Individualized Education Plans (IEPs)"
2:30 pm - 4:00 pm - Guest Speaker Pediatric Surgeon, Dr. Priscilla Chiu (Sick Childrens, Toronto, Canada) will discuss surgical repair of Congenital Diaphragmatic Hernia
4:00 pm - 5:30 pm - Guest Speaker & CDH Mom, Brenda Slavin, RN will discuss the Intensive Care Unit and Nursing Care
5:30 pm - Open Group Discussion
SATURDAY, JULY 26th - Relaxed Conference at Pullen Park
9:00 am - 10 am - (Choice of) Round Table Discussions
"Having babies after the lose of a cherub" or
"Having babies while dealing with CDH"
10 A.M--11 A.M.-- (Choice of) Round Table Discussions
"Learning how to deal with family and friends" or
"Learning how to work as a team with medical professionals"
11 A.M.--12 Noon-- (Choice of) Round Table Discussions
"Helping siblings understand CDH" or
"Finding ways to make CHERUBS better"
12 Noon - Families enjoy the park!
Saturday, July 26th, 7:00 pm - 12 midnight - CHERUBS Angel Ball
Monday, July 28th - CHERUBS Golf Tournament