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Thread: CHERUBS Australia - We finally did it!

  1. #1
    Senior Member
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    CHERUBS Australia - We finally did it!

    At our first member get together in Melbourne 2001 we decided to try and become a registered group so that we could raise money to support families and research etc.

    I spent hours looking at all the options for registering our group and each thing I looked at just didn't suit - most groups in Australia are registered on a state basis but we are national and needed to register nationally.

    In Brisbane 2006 one of our wonderful members, Linda mum of angel cherub Emma announced that we had been successful in obtaining the pro-bono services of solicitors from the company she worked for (national law firm).

    It has taken 18 months working with solicitors but finally we have completed all of our legal requirements!

    We are a registered non profit public company. We are endorsed by the Australia Tax Office as a Health Promotion Charity. We have received Deductible Gift Recipient status. Everything that we have worked so hard towards is finally in place. I am so excited and so very relieved that it has all worked out in the end.

    Over the coming months we can turn our thoughts towards raising funds, applying for funding etc and trying to make a real difference to the lives of CDH children and their families from around the country.

    A huge thank you to all of our Australian members who have spent so much of their spare time helping us achieve this. A special thank you to Dawn for all your support and for being the inspiration that you are.

    We did it finally!
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  2. #2
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    Ooops - forgot to clarify that DGR status means that donations are tax deductible - not an easy thing to be endorsed for in Australia but we did it
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  3. #3
    CONGRATULATIONS!!!!!!!!

    Danielle and your hard working Aussie Members... thankyou so much......

    Bring out the MOET.....
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  4. #4
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    That's wonderful! Congratulations to Aussie CHERUBS!!!!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  5. #5
    CONGRATULATIONS!!! What wonderful news!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  6. #6
    Great job Aussie CHERUBS!! What wonderful news. All of your hard work has paid off.
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  7. #7
    YEAH!!!!!!!!!!!!!!!!!!!!!!! I am so happy for you!!!!!!!!! And all the exclamation marks aren't an exaggeration!!! LOL. I've been praying and wishing this for you guys for years and I'm so glad the day has come!!! Danielle, you are such an amazing President, I am so proud of you and all the Aussie members!!!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #8
    yahooooooooooooo
    way to go !~

  9. #9
    Danielle that is WONDERFUL!!! You all have worked so hard and I am so happy that the outcome waspositive1 YEAH!! Congrats to you!

  10. #10
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    Thanks everyone - I almost have our new website ready for public viewing also.

    Wish I could be over there for the conference. Have been reading all your posts getting ready to go, hair styles, dresses etc. Wishing I was there and trying not to feel too jealous, lol.
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

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