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Thread: Our WONDERFUL Conference / Angel Ball / Golf Tourny Weekend!

  1. #1

    Our WONDERFUL Conference / Angel Ball / Golf Tourny Weekend!

    The conference was very successful!!!!

    All of us just clicked and got along great, like we always do here! There were a few bumpy starts with health, car and travel issues for some, but everyone made it here safe and sound.

    The doctors were AMAZING! Dr. Longoni and Meaghan Russell - wonderful doctors and just great people! They hung out at the hotel, sat in on round table discussions and offered information to anyone who had questions. And their presentation was so wonderful! They had just the right blend of information so that none of felt like they were talking over our heads or down to us. And we learned SOOOOO much! Wonderful, wonderful people! Dr. Chiu flew in from Toronto on Friday morning, hung out with us for the day, gave her speech and few back to Canada on Friday evening - out of her own pocket (all doctors did). Her speech on pediatric surgery was incredible as well! Very, very informative! All 3 doctors are such caring people and so genuinely supportive of our CHERUBS families and of CHERUBS. We are just so impressed and appreciative of them. And Brenda.... wonderful job on her speech as well! She really gave us great insight on being on the medical side of CDH and how that impacts doctors and nurses and what we don't see. Just wonderful!

    The round table discussions were great as well! We didn't get to all of them... we are a talkative bunch and ran out of time on some! We laughed, learned, talked and cried. But we really learned a lot - about CDH, each other, and how so very true it is that none of us are alone.

    The pizza party was wonderful! We met each other, talked, ate, sang Happy Birthday (cha, cha, cha Amy!) to those July babies and it was all a lot of fun.

    I had to drive home on Thursday (an hour and a half each way) to pick up my mom for Friday so I missed the partying that night, but I'm sure there will be stories... or maybe not....

    Wednesday night several of us went out for dinner and I have to say.... Barb's boys, the Olivarez girls and Miss Ayla..... angels. Dinner took a while, they all had driven all day.... and every one of those kids were so well behaved!

    Friday, the kids had visits from clowns Hubba Bubba and Magic Dan. The adults partied again Friday night a bit and helped me finish up things for the Angel Ball on Saturday.

    A HUGE thank you to all of our conference committee volunteers, all the dads who helped tote things and run errands, the family members who helped with the Angel Ball programs, those who helped with clean up and prep work and to Stephanie - girl, you are an angel and the conference wouldn't have happened without you!

    Thursday night they all - and even some of you who didn't go - made me cry. Barb put together a book with photos and letters from members to me and it is so beautiful and special and wonderful and amazing... Barb, I love you girl, and all of you... thank you so much. This book means more to me than any gift I think I've ever received. Thank you, from the bottom of my heart, thank you.

    I am so ashamed to say that I took no photos. I was so busy I just didn't have time. So everyone, PLEASE e-mail me your photos!!

    Angel Ball....

    Was beautiful. All of our members were GORGEOUS - guys included!!! Our event planners, the Jr. Women's League, Tournament guy, florist.... made the ballroom spectacular. The band was amazing, the M.C. was wonderful, the volunteers were so great! We are so, so lucky to have had so much support to pull this off! ALL of the vendors and volunteers have already signed on for next year!!!

    We had a blast! Shane had more fun that most I think. LOL. Brenda didn't miss a single dance I think. I think everyone got on the floor at least once except Kara. Or did I miss that?

    There was definite basket fighting. Stephanie is ruthless. lol.

    Almost all of our raffle winners were members! I'll let them tell you what they won! Judi won the grand prize.

    Attendance was low I think but our event planners keep telling me it was an amazing turn out and event for our first year - far better than most charity's first events like this ... I don't have any numbers yet on how much it made but even if it was just $1 - we raised a heck of a lot of awareness in the community!!!!!

    A really great thing happened at the Angel Ball.... a couple became engaged. A local guy bought tickets to bring his girlfriend on a date and proposed to her. No, it was not me! Darn it!

    Golf Tournament....

    is tomorrow. I'm working on everything and sitting here printing off programs and finishing up the signs. We need more players or we will be very much in the hole on this event. Please say prayers!

    I had to leave the hotel early today and didn't get to say good-bye to everyone. My sister is having surgery tomorrow and my mom (my ride since I left my car at home) had to get back to VA.

    It was so, so great to see so many of you again and to make and see new friends as well. We really are like one big (dysfunctional) family and I love it!!!

    It was / is all a great weekend! But never, ever again 3 events in 1 weekend while working & commuting 12 hours a day! I wasn't nearly as prepared as I wanted to be and I didn't get to party with everyone much. I could barely keep going Friday night. Tuesday is my first day off in 2 months from work and CHERUBS event stuff - no one call or e-mail because I will be asleep ALL DAY! LOL. But it was all so worth it!! I am so looking forward to having time to post again and catching up here with all of you! I've really missed being able to hang out on the forums with you!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Absolutely wonderful Dawn!!! Thank you so much for posting about the week's events. It sounds like we missed one heck of a week.

    It seems everyone was truely blessed with a great time. Sorry I missed it, maybe next year
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

  3. #3
    Great summary dawn ! and you are right, the speakers were great ! ! ! !
    i hope we will be able to attend next year !
    how have you got any energy left to be on here girl !?!?

  4. #4
    Dawn,
    Sounds like a great week was had by all. Thanks so much for taking the time to post this
    xx
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg

  5. #5
    I'm high on caffeine until these programs finish printing and this sponsor sign is done - then I'm passing out and back up at 5 am for the golf tournament!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  6. #6
    OHHHHHHHHHHHHHHHHHHHH girl . are you going to crash and burn or what.
    you better rest next week !
    I can tell you that i havent laughed as hard as i did this weekend since , hmmmmmmmmmm since way before cole was born.
    not that i'm not happy, just the stress of things, we did learn a lot here ! But i will tell you I needed to social support almost as much as I did anything else. just to be around others that have been through similar situations, you can truly laugh , cry, and be yourself, as you said dawn, no question is too small.
    my hope is that other members of cherubs that arent as active will become active to they can reap the benefits of what we are all about.
    Barb did do an AMAZING job on your book!
    We do love you DAWN!

  7. #7
    Dawn,
    Thanks for posting so soon. I knew it would be a GREAT event just like the last one good luck on golf tomorrow.
    Elaine- mom to Kristin 22- LCDH- nissen- ASD- oxygen till 2 1/2- g-tube till 4 1/2- bowel obstruction at 14 yrs old- only one lung. Also mom to Brittany 18- no CDH just 2 mths premie.

  8. #8
    Sounds like a great weekend, i so wish i could have been there too!
    [url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]

  9. #9
    Senior Member
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    The weekend has been AMAZING!!! So many laughs-and tears....

    The speakers were wonderful!!!!

    I haven't had so much fun in a long long time! Although I think I need a week of sleep to regroup!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  10. #10
    Senior Member karahess's Avatar
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    AMEN SISTERS! This was a truely amaizing weekend. I got back to the hotel after the ball and just cried happy tears. It was a powerful weekend indeed.

    Raffle drawings . . . . . we won Ray Banz sunglasses and restaurant gift certificates. We also won the silent auction for the 4 night/5 day hotel stay in Hawaii!! Woo-hoo!!
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

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