Y'ALL what great news!! Go Pen...
Make sure you post it when its published!
Y'ALL what great news!! Go Pen...
Make sure you post it when its published!
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
THANK YA'll !!
It's only a once a week paper LOL!
but the whole county reads it, and our county is the largest in VA so i am excited!
I will post when they publish, will be end of next week
How did it go???
I was all excited to check in to hear all about it.
Don't keep us waiting to long girl!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
went good!
gave him brochures, handouts, etc
statistics, info about cole, he was very interested in CDH! ! :0)
it will be out in the next couple of weeks, will post when it's on
Awesome!! Can't wait to see it.
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
YOU GO PENNY!!!!
Can't wait to see the article.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
This should be the direct link to the article on cole.
yall let me know if this doesnt work ...
http://www.wpcva.com/articles/2008/0...ews/news53.txt
ok it worked for me :0)
Ya'll try to get a look at it, i went out last night to the local CVS and grocery store just to pick up a few things b/c we had been out of town..
WELL our family and CDH is a celebrity now. I bet 10 people stopped and asked me about cole and CDH.!
I am so happy to bring the attention to CDH !
That's great! I love that Cole wants to ride bulls! Way to go!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url