whoo hoo, very very very cool!!! That really is so awesome. So all our new parents can give their doctor this link!
How awesome for them and you
whoo hoo, very very very cool!!! That really is so awesome. So all our new parents can give their doctor this link!
How awesome for them and you
Also, doctors will be able to post themselves asking parents to join in on research studies. No more having to go through us to post it.
And we're working on getting a few docs to do a Dear Doc section where you all can post questions.
Of course a thousand disclaimers will be there!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Gosh...this is AWESOME!!!!!!!!!!
That will be so informative to have a Dear Doc section.
I think it will benefit all of us.
LOVE IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
I could have used that with Grace. I hated the care I rec'd. I would have loved to log on somewhere and say, "Can they really do this??"
I don't know about anyone else - but I find the old research surveys fascinating to read. As moms touched by CDH we always are looking for that one thing or combination of things that could have caused the CDH to happen. Comparing the experiences, lifestyles and medical histories of those parents touched by CDH will hopefully someday help us to find that common denominator.
Christie