Brilliant news Beverly!!
I LOVE the pic of Cody -he's adorable...
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Brilliant news Beverly!!
I LOVE the pic of Cody -he's adorable...
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
That is amazing news!! Cody is such a cutie, I love his santa pic
Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
Its so funny he was on all fours holding him self up, and i was taken pictures.. I was lucky to get that one. Our nurse Chris. she was even like wow!! it look's like we posed him..... Cody loves the camera.
there are more pictures of him in the outfit
http://dakota-cody.com/Santa-Cody.htm
http://dakota-cody.com/gallery/thumbnails.php?album=15
I am loooking for mom's to vent to!! nothing bad but, having to deal with his trach/ vent. is getting so hard it now takes sometimes 3 people to do just a tie change... HELP!!
http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img
oh...... I forgot !! please dont think i dont get on here and read posts.
I love this support group!! Its just so hard to get online much now days.
I have not had a nurse since yesterday morning. and i went to sleep.. But the part that sucks is i have not had a mid-night nurse since Monday night. I have been going on about 3 / 4 hours sleep in a 24 hour day.
I'm still sooooooooo happy Cody is home with us.. I wish they had awards for moms like us. so sad moms who have babies who have nothing wrong with them and they complain!!! let them walk in our shoes for 24 hours and they would feel blessed..
we have angels for babies!!!!!!!!
HUgs
http://photos-h.ak.fbcdn.net/hphotos..._2290456_n.jpg Left side CDH- ECMO 9 days- Had his surgery Thursday 01-03-08!! trach w/ Vent.. Weaning off of vent 4 hours a day... @ 21 months started potty traing... mikcey button since 9-2209 As of 2-2009 Dakota's Tracheomalacia and Bronchomalacia ( floppy airs ways) Is now gone. his airways are a normal size!! He's my heart and my soul!!!! I am very blessed.... Dakota's Mom.. ( Beverly) www.dakota-cody.com Movie's about Dakota's fight to live: http://www.dakota-cody.com/videos_of_cody.htm http://dakota-cody.com/cody/CodysFoundationbutton.gif www.codysfoundation.com[img
WONDERFUL!!!!!
Cody looks great and I am so happy for you Bev!!!
Looking forward to hearing more fantastic updates about Cody.
Hugs to you all.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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