Me, too!
Me, too!
Grayton Karleigh Creekbaum diagnosed at birth on 5/09/08 with RCDH and she went to heaven on 6/22/08. She also had Pulmenary Hypertension- problems with blood clotting factors- and she went through 5 EMCO machines which got her the title of "Queen of the ECMO" by the head nurse - hence the boa and crown! bowel- liver- small intestines up with gortex repair had her repair while on ECMO on ECMO for 44 days (her entire life) Nitrate for 30- vent for 34 days- oscilator for 10 days Our Blog: www.thecreekbaums.blogspot.com
This is getting very exciting - cant wait to find out who it is!!!
Angela - mum to Max (LCDH 30/4/05 - 21/5/05) Also mum to Joseph 9- Christopher 7 and Dominic 2.
I can hear a drum roll.............
lol - you will never make the same mistake twice hey Dawn I think it's good to get us all excited though.
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
Sheesh, you aren't kidding, Danielle, I learned my lesson!!!! Maybe there is a link to CDH and parents with a lack of patience!!! LOL (myself included!)
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Very excited, can't wait to here the news...
Mommy to Jesse- LCDH (9-23-99 TO 9-24-99) lived 15 hours than got his wings. Austin (11-26-00) happy and has ADHD. Colton (7-29-02) happy and healthy.
I was trying to figure out last nite who it could be...........we are all on the edge of our seats!!!
Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
tick tick tick....
Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
Can't wait!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url