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Thread: Day of Prayer & Education for CDH - May 17, 2009

  1. #1

    Day of Prayer & Education for CDH - May 17, 2009

    On May 17, 2009 we invite all houses of worship, clubs and organizations to join us in raising Congenital Diaphragmatic Hernia Awareness!!!!

    Churches and other houses of worship are a great place to raise awareness - their service programs often talk about charity work that they are involved in. We are asking all churches to include just a few paragraphs about CDH in their church bulletins on May 17, 2009. 1 church can raise awareness with 100's of people! If we all get our churches, friends and family's to join in with their churches, plus clubs and other organizations.... we can raise awareness around the world!!!!

    "Churches for Cherubs" is just a rough draft name... we really don't have a name for this event. I just like the sound of that name. But it does include ALL churches, temples, synagogues, clubs, organizations, etc. Other CDH groups are welcome to participate and use a different name or "Churches for CDH" or "Day of Prayer for CDH" or whatever they'd like to join in!

    Also, besides the educational part of this event... we would really like to ask those of you who pray to do so on this day. Pray for the babies and families affected by CDH, pray for the researchers and doctors and nurses. Pray for the end of Congenital Diaphragmatic Hernia. No matter your beliefs - please think positive thoughts to the end of CDH so that no more babies and families will suffer from this devastating birth defect.

    You can ask more than 1 church to participate - invite every church in your town or all the churches in your district!

    We don't want to exclude those who don't go to church. If you don't go to church, you can participate in other ways! You can hold an event such as a balloon release or candle lighting ceremony. You can have a fundraiser. You can just wear your CDH Awareness clothing or a ribbon button and tell people about CDH.

    How do we do this? Just take the following paragraphs to your pastor / rabbi / priest / leader and ask them to print them in the church bulletin for Sunday, May 17, 2009. Feel free to use any of our graphics or your cherub's photo in the bulletin!!

    -------------------------------------------------------------

    Congenital Diaphragmatic Hernia

    Congenital Diaphragmatic Hernia (CDH) occurs when the diaphragm fails to fully form, allowing abdominal organs to move into the chest cavity and preventing the lungs from having enough room to grow. CDH occurs in 1 in every 2500 babies. 1600 babies in the US every year. Over a half million babies around the world since 2000. Every 10 minutes a baby is born with CDH.

    Babies born with CDH undergo surgeries and long hospitalizations. 50% of babies born with CDH do not survive. The cause is not known.

    Please join us in learning about CDH and raising awareness so that more research may be done and more babies saved.

    For more information about CDH, you can visit www.cdhsupport.org







    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
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    I think this is a great project! Think about how much awareness we can spread by doing this!
    Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog

  3. #3
    I am so excited since it is the same day as my bowl-a-thon! How cool is that?!

  4. #4
    Pretty darn cool, Barb!!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  5. #5
    Is this the same thing as the "Day of Prayer and Education for CHERUBS" on facebook?? I like the previous name better than "Churches for Cherubs"--just bringing Churches into the equation brings up religion I think and may make some feel uncomfortable. The Day of Prayer and Education sounds so much better.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  6. #6
    Yes, same thing. No official name. But I think you're right, Tracy!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  7. #7
    I have to say... credit for this idea is all given to Kate!!!! She had something written in her church program about Shannon and it's been the inspiration behind this Day of Prayer & Education for CDH. So thank you Kate, Steve and Shannon!!!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #8
    This is a wonderful thing for CHERUBS!
    What a great way to get the CDH Awareness in the public!

    KATE----Thank you for this wonderful idea and Thank you Dawn for getting it all organized.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  9. #9
    I agree! great idea!!!!!
    I will work on it, many family members and friends go to church, I am sure I can get at least 3 churches to post it. Crossing my fingers that my Juan will be on survivor pic
    http://i618.photobucket.com/albums/t...bonsmall-1.jpg http://i369.photobucket.com/albums/o...las/img253.jpg JM having a bath- favorite time of the day !!! Marilu- mom to Gael 10 years old, Derick 4 years old and my cherub Juan in a Million diagnosed in utero @ 18 weeks with LCDH. Born at 38 weeks- repair day 12- 2/3 of diaphram missing (in two sections) part of the bowels and liver in chest cavity. Oscillator 8 days- vent 14 days- extubated day 22- 1st full bottle day 28- chest tube for 21 days- Home day 42!!!! NOW 6 YEARS OLD And still doing miracles, Loves karate classes. -*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-

  10. #10
    Well I am absolutely honored, Dawn

    I am definitely going to participate in this!!!! Just a little side note, at some churches you can donate an arrangement of flowers, it helps bring even more awareness! So if you take this to the church to have printed in the bulletin, consider donating an arrangement in honor of CHERUBS.
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]

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