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Thread: Who is attending the 2009 San Antonio Conference?

  1. #21
    Thank you!! My hubby is and has been out of town since Monday and in meetings ALL day to boot. I've only gotton a chance to bring it up to him and he sounded like it may be doable! I really hope he and I, and my 3 kids, with my mom, will be able to go!

    I definitely want to go and meet you guys and many more!!
    Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.

  2. #22
    I am coming with Shane (husband), Morgan, Taylor and Shelby.

    I am looking so forward to this years conference!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  3. #23
    Just found out I am able to get the days off of work so me and my 2 rug rats are planning on coming.

    Kim, Alyssa and Carsen Richards
    Kim Richards Mom to Olivia Raine 08/31/02-09/19/02 LCDH- Ecmo 19 days Mom to Alyssa 3/30/00 & Carsen 02/19/04

  4. #24
    Yeah!!!!! So glad you will all be able to come!!! I am so excite to meet some of you and to see others again!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  5. #25
    How far in advance do we need to book hotel rooms or do you need a definite head count first to be able to notify the hotel how many rooms you will need?

    Thanks!!
    Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.

  6. #26
    Oh and Dawn, I sent you a PM. At least I think I sent you one? lol, I'm still trying to get use to the forums.
    Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.

  7. #27
    OK, add me, my husband David, and 3 kids- Michael, Bethany, and Christopher "Chris" and my mother Lynnette will be in attendance at the conference as well.
    Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.

  8. #28
    jenn im glad you are coming.

  9. #29
    Senior Member
    Join Date
    Jun 2007
    Posts
    907
    Blog Entries
    1
    Can't wait to meet you all We have booked all of our internal flights and have our itinerary worked out - it has changed heaps from what we first thought we would be doing but we are very excited with our plans.
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

  10. #30
    Senior Member
    Join Date
    Dec 2007
    Posts
    599
    Just FYI for those of you going, there's a large group of zoos and aquariums nationwide that participate in this reciprocal membership program; I found out about it when I bought a membership to the Texas State Aquarium last week. Basically, when you buy a membership at one, you get free or discounted admission to all of them (and it's quite a list!) Definitely worth a look, the San Antonio Zoo and Aquarium are part of it (not Sea World, but Sea World is overcrowded and overrated IMO).

    http://www.sazoo-aq.org/support/file...Reciprocal.pdf
    ~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!

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