You ladies are just awesome!!!!
I e-mailed several reporters today, hopefully will bite onto a story about CDH.
You ladies are just awesome!!!!
I e-mailed several reporters today, hopefully will bite onto a story about CDH.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I realy hope and pray Kristin that someone hears us....you are such an amazing advocate for cdh!
You are motivating all of us!!!
I emailed them also, that is a great idea...
Hi Kara.
Thank you so much for joining us. Every little bit helps.
How is candence? What a beautfiul name she has! Is tomorrow her 1st birthday????
I was doing some research on CDH one day while at the NICU and the Oprah show was on the tv in the parent room. I had the idea to submit my daughters story & some information on CDH. I asked that a show be done on CDH to bring more awareness & support for those born with it & their parents. Hopefully one day soon, something will come of it. I think its a great idea & totally agree that if everyone can submit their story, maybe the Oprah Show will respond! Great idea!!!
I hope so Tara. I saw an Oprah show where a woman had twins: one lived, one died. Oprah looked so uncomfortable. I also wrote to Oprah, Ladies Home journal twice, Womans day and one other one.
We were kinda batting around the idea that maybe Oprah feels uncomforatble w/ infant death because her baby died when she was a teen. What do you think? I don't know.....
Welcome to CHERUBS, Tara! We'll get CDH on there - there is power in numbers and CDH moms are notorious for never giving up.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Ok ladies, so I was sitting in the bathtub last night reading my Chicken Soup for the Mother's Soul book and I decided to scroll through the back and read about the authors. Hot dog! There is a big list of freelance writers for magazines or magazine article publishers. They list their addresses and/or phone numbers. One in particular struck me that we need to write to.
It said "Liane Kupferberg Carter is a freelance writer whose work has appeared in the New York Times, McCall's Child, Glamour, Cosmopolitan and Newsday. She lives with her family in Westchester, New York, and is a community activist on behalf of children with special needs. She can be reached at lcarter@cloud9.net."
My book was published in 2006 so it's not too old, but you know how people change email addresses often. I don't know if it's still a working email or not, but I bet if we google her name, we could dig up info on her and contact her somehow.
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
I have her email in a email right now. I'll send something off asap.
I love Chicken Soup...my teens have them too
Gray's Anatomy message board - just posted about this about that thread. Let's start posting and let's get family and friends to post too!
http://abc.go.com/primetime/greysana...931&tid=181433
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.