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Here are the suggestions, in no particular order (I started out in alphabetical order and confused myself! LOL). If I forgot any, please let me know!!
If you can see the options to vote then that means you haven't voted yet. If you can see the results that means the system took your vote. You may need to reload/refresh your browser after you vote.
I'll keep the voting open for a week.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
There are several good ones....hard to pick one!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
i've voted was tough though, a few i like xx
Hayley xx
Proud Mummy to Our Little Sunshine Warrior- Lewis Nathan Richard Boyd- was born by emergency C section on the 12th November 2009 weighing 7lb 8oz with a known LCDH which was found at 17+ weeks everything UP including part of his liver 61 Days in NICU Repair on Day 5 using diaphragm muscle and tummy muscle 18 days on Conventional Ventilator 6 days on Oscillator 18 days on Oxygen home at exactly 2 months old on 12th January 2010 Oxygen free with only an NG tube feeding issues and oral aversions ongoing http://dreamnumber3.blogspot.com Also proud mummy to Nathan- our 1st born- who was born sleeping 7th March 2008- due to severe Hypoplastic Left Heart Syndrome
I got my daughter to help - we both liked the same so that worked well
Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
I wish I could vote more than once, it was hard to chose! There were so many good ones!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
All good! Definitely hard to choose!
Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email
Great suggestions!
Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
I just had to think back to when we were at the hospital...and it came to me.
http://i618.photobucket.com/albums/t...bonsmall-1.jpg http://i369.photobucket.com/albums/o...las/img253.jpg JM having a bath- favorite time of the day !!! Marilu- mom to Gael 10 years old, Derick 4 years old and my cherub Juan in a Million diagnosed in utero @ 18 weeks with LCDH. Born at 38 weeks- repair day 12- 2/3 of diaphram missing (in two sections) part of the bowels and liver in chest cavity. Oscillator 8 days- vent 14 days- extubated day 22- 1st full bottle day 28- chest tube for 21 days- Home day 42!!!! NOW 6 YEARS OLD And still doing miracles, Loves karate classes. -*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-
Dawn
Interesting that the two leading ones both have H.O.P.E in them. Have you considered that this might stir up you know who from Breath of Hope. I know it has absolutely nothing to do with their organisation but don't you think we should be avoiding any accidental association with their organisation. Or the fact that she could try to go legal on that one too????
Was just a thought.
Kath Mum to Jessica Kate - born sleeping 09/09/2008 (due 17th Jan- 2009) Left-sided CDH- Trisomy 18 (Edward's Syndrome) and Trisomy 9. Also Mum to Sam-9- Hannah-7 and Zac-4.
After I saw the voting, I thought the same thing, Kath! It didn't occur to me until then.... don't know what I was thinking! But you know what... Kays Kids is named Real Hope For CDH... long before BoH existed. And there are 3 other non-profits named Breath of Hope (before the CDH BoH group was formed) and 2 other CDH groups who use Hope in their name / slogan.
She has no legal claim to the word "Hope". We can't tiptoe around every vocabulary word afraid to set off 1 woman. Besides, no matter what we say or do, she'll complain, criticize or file a false report with an agency about anyway. All we can do is keep our heads up, know we're doing nothing wrong and keep working to help CDH families. And if she says a word, we'll just let our lawyers deal with it.
So if that's what our members vote for, then I think we should use it.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
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