WHAT!!! 2010 conference in S.F.!!! WOW, really!!
I would love to help! I have some great ideas for some guest speakers.
May I ask, why S.F.? Just wondering!
WHAT!!! 2010 conference in S.F.!!! WOW, really!!
I would love to help! I have some great ideas for some guest speakers.
May I ask, why S.F.? Just wondering!
See what happens when you miss us for a while! LOL
SF because Dr. Harrison is there and UCSF is a great support to us and we'll have awesome guest speakers.
Plus, we need to have it on the West Coast, SF isn't as dry as Southern California and not as humid as Washington. Just makes sense to have it there.
And we'll need all the help you can give us!!!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
The Jammies are currently in the studio, recording the song!!!! : ) It will be available in a few week through iTunes and proceeds are going to CHERUBS!
I am sooooo excited!!!!! : )
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Have you heard any of it yet Dawn? Just wondering. I can't wait!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
I haven't, Karla. I can't wait either! : )
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I got to hear the song today. : ) It's WONDERFUL!!!!! It's not a kid's song, it has morphed into a song about having a child in the hospital. I cried and had such goosebumps listening to it!!! Craig even cried too (he can relate to the PICU/NICU experience because of Braden having craniosynostis). It's going to touch a lot of families!!!
We're unveiling it at the conference and I will have a video of the song with our cherubs photos up next week. If you want your cherub's photo included, please make sure to add them to the 2 photo albums (survivor and non-survivor) - that's where I always pull photos from for projects.
The song will go on iTunes soon so everyone can purchase and use it (I expect to see it on a lot of personal videos!). Proceeds of sales are going to CHERUBS!
The Jammies are amazing... I can't say enough good things about them.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Look forward to hearing it at the conference!!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org