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Thread: Current CDH Research Studies

  1. #11
    Senior Member karahess's Avatar
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    Daryll and David, it was an honor to have both of you attend the conference! Thank you so much for your presentation.

    To our members, if you can get an opportunity to watch a video of the presentation, I highly recommend it. You will learn a lot! The work that is being done on CDH research is amazing. If you would like to be part of the research, you can do that, too.
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  2. #12
    Is the video up? Where can I find it?
    Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/

  3. #13
    Not yet, Nicolle, by next week it will be!

    David, please send me the slide presentation. Thanks!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  4. #14
    cant wait! Thank you
    Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/

  5. #15
    Can't wait for the video..
    ~Jenn~ proud mommy to Adrian; LCDH diagnosed in utero- repair at 10 days old while on ECMO. 11 days on ECMO- 12 days on the Vent and 36 days with oxygen. 5 weeks at Children's Boston and another 5 weeks for recovery in our local hospital Hasbro. Spent 72 days away from home. At 5 months old AD had a stroke due to ECMO; no complications with that- went home after 7 days with meds. Currently a happy 1-year-old; when you look at him you wouldn't know all this happened... : ) Also proud mom to 6-year-old Damian http://i45.photobucket.com/albums/f8...iveraSmall.jpg

  6. #16
    Molecular Genetic Analysis of Congenital Diaphragmatic Hernia

    Columbia University -Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

    Contact: Julia Wynn, MS 212-305-6987 jw2500@columbia.edu
    Contact: Wendy Chung, MD, PhD 212-305-6731 wkc15@columbia.edu

  7. #17
    Rectal and Oral Omeprazole Treatment of Gastroesophageal Reflux in Infants With Esophageal Atresia or Congenital Diaphragmatic Hernia; A Pharmacodynamic and Pharmacokinetic Study.

    Contact: P. Bestebreurtje, Pharm D +31355391398 pbestebreurtje@tergooiziekenhuizen.nl

  8. #18
    Chronic Sildenafil for Severe Diaphragmatic Hernia

    Contact: Roberta L Keller, MD 415-514-3192 kellerr@peds.ucsf.edu
    Contact: Samuel Hawgood, MBBS 415-476-9181 hawgoods@peds.ucsf.edu

  9. #19
    Percutaneous Endoscopic Tracheal Plug/Unplug for Congenital Diaphragmatic Hernia
    Contact: Jody A Farrell, MSN, PNP 4154760445 fetus@ucsfmedctr.org
    Contact: Tamara Ryan, ADN 4154760445 fetus@ucsfmedctr.org

  10. #20
    Randomized Control Trial of Fetoscopic Endoluminal Tracheal Occlusion With a Balloon Versus Expectant Management During Pregnancy in Fetuses With Left Sided Congenital Diaphragmatic Hernia and Moderate Pulmonary Hypoplasia.
    Contact: Jan A Deprest, MD PhD +3216344215 Jan.Deprest@uzleuven.be
    Contact: Tim Van Mieghem, MD +3216340829 Tim.VanMieghem@uzleuven.be

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