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Thread: Let's get Dr Oz to do a CDH show

  1. #1

    Let's get Dr Oz to do a CDH show

    Ok CDH families, let's get Dr Oz to do a CDH show!

    Share your story or copy and paste CDH info (you can use any of ours posted here or on our blog, site, etc)

    http://www.doctoroz.com/plugger?tid=21

    Below is Dawn's letter - feel free to grab any statistics!


    ------------------------------------

    Dear Doctor Oz,

    Please consider doing a show on Congenital Diaphragmatic Hernia.

    CDH is a devastating birth defect that affects 1 in every 2500 babies. A baby is born with CDH every 10 minutes - this adds up to half a million babies since 2000. This is as common as Cystic Fibrosis and Spina Bifida but yet most of the public has never heard of it. CDH occurs when the diaphragm fails to fully form, allowing abdominal organs to move into the chest cavity and preventing lung growth. 50% of babies born with CDH do not survive. The cause is not known.

    I run an international grassroots charity here in the NC called CHERUBS. We help families of babies born with Congenital Diaphragmatic (CDH). CHERUBS was founded in 1995 after my son was born with CDH and transferred to Duke. I was 19 years old, there was no internet, no support group and no information. Thus, CHERUBS was started and now we help 1000's of families, on a shoe-strung budget with no paid employees, and we run the largest long-term CDH research database in history. We are the world's oldest and largest CDH organization and work with families and doctors in 38 countries. Yet, we are struggling to raise CDH Awareness.

    We have dozens of members who would love to be on your show and talk about their children. You could talk about CDH repair, in utero procedures such as fetal tracheal occlusion, ECMO, long-term issues, etc.

    CDH is as common as Spina Bifida and Cystic Fibrosis, yet we have so little awareness and virtually no research. Your show could do so much for our cause by bringing CDH Awareness to millions. And I know it can help so many CDH families to less alone.

    We would be so appreciative if you would consider doing a story on CDH.

    Thank you so much.

    Dawn Williamson
    CHERUBS President & Founder
    919-610-0129
    http://www.cdhsupport.org
    http://www.cdhresearch.org
    http://cdhsupport.blogspot.org
    http://www.shane-torrence.org (my son's story)
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    I submitted mine yesterday too!! Hope one of our stories will get his attention. I love watching his show (I ususally record it and watch it after the boys go to bed).
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  3. #3
    I submitted mine too! I read his bio online too. It seems he has some connections to Philadelphia. Very interesting!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

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