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Thread: 2010 CHERUBS International CDH Conference

  1. #1

    2010 CHERUBS International CDH Conference

    Our 2010 International Member Conference for families affected by CDH will be in San Francisco!

    Details to be posted soon!

    If you'd like to volunteer to help plan this event or want to sponsor, please contact us at events@cdhsupport.org
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    any idea what month?
    Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/

  3. #3
    So excited for the conference to be on the West coast! San Francisco is beautiful and hopefully not as hot as Texas! It has been 9 years since I have been to CA, but we went in early August and the weather was perfect. Planning and saving money to attend...hope it all works out.

    Is it going to be a late June or sometime in July event?
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  4. #4
    I'm hoping to be there but probably won't bring the family this year as it will be too expensive. I'm sad about that but hoping I can still come by myself!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

  5. #5
    Awwwwww....California is SO far away!!!
    Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email

  6. #6
    Hopeing to make it! Might be me and a friend but should be there!
    Mom to Kailee Mae Glover Aug 27- 2007 and Gwendolynn Leigh Glover Feb 02-2009 to Feb 26- 2009 Right sided CDH 1 surgery liver failure on ECMO for 23 days dialisis off and onfor 24 days. <a>http://lagf.lilypie.com/STdbm6.png</a> www.caringbridge.org/visit/gwendolynnglover

  7. #7
    Yeah! I can not wait! I am so excited!

  8. #8
    Well I am very sad I can't make it .........
    I will miss it so much!

  9. #9
    Senior Member karahess's Avatar
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    Ahhhh Penny - you said that last year and yet you still made it

    Hoping I can attend the California conference. I'm thinking it'll be right around my vacation time again so I might not make it.
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  10. #10
    As a newbie, this is great news since I live only 60 miles away from San Francisco. I would love to attend and help if I can. I am due March 30th so depending on the date of the conference, I would like to offer as much help as I possibly can.

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