Alright! I'm so excited my first CHERUBS conference!
Alright! I'm so excited my first CHERUBS conference!
Melissa- mother of Kiyari Juliet born 7/06/2008- LCDH and big sister Daliah Jolie born 10/24/2006- 30 weeks premie. Vent- c-pap- nasal cannula. First surgery 10 days- on ECMO three weeks- second surgery at six months- Fundo- NJ- mickey button- cardio cath-lab at 8 months- spent nine months at Rady's Children Hospital NICU in San Diego-California. Came home on March 31st 2009 on nasal cannula- low flow- 100% oxygen and GT feedings- interested in food- but unable to swallow it. Cardio cath lab 3/2009- 8/20/09 and 2/9/10(Finally closed PDA)- 3/2/10 complication with pressures- 3/5/10 plug removed- PDA open again. Broviac 8/21/09- 12/3/09(came out- replaced)- 2/16/10(replaced again)- and 5/12/10 (repaired). Severe Pulmonary Hypertension- on Sildenifil- Bosentin- and Remodulin to treat it. Kiyari is a happy girl- loves to sing- dance and play peek-a-boo! Some language delays- but catching up!
I'm so glad many are planning to attend! I hope I can make it and that it is not the same time as my family reunion this summer!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
im going to do my best to attent this year
~Jenn~ proud mommy to Adrian; LCDH diagnosed in utero- repair at 10 days old while on ECMO. 11 days on ECMO- 12 days on the Vent and 36 days with oxygen. 5 weeks at Children's Boston and another 5 weeks for recovery in our local hospital Hasbro. Spent 72 days away from home. At 5 months old AD had a stroke due to ECMO; no complications with that- went home after 7 days with meds. Currently a happy 1-year-old; when you look at him you wouldn't know all this happened... : ) Also proud mom to 6-year-old Damian http://i45.photobucket.com/albums/f8...iveraSmall.jpg
I hope that you all can make it!! They are so full of great info and support!
Dawn.....is it the 2nd week in July this year?? Did I dream those dates?? LOL
Second week would be great!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
The conferences are awesome! You all will enjoy and learn so much.....I am so sad we can't go
If all goes well with this little one I plan on attending!
Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/
Oooo, I want to go! Matt sounded interested, and we usually hit California for summer vacation anyway.
Chris Tennyson Married to Matt 12 years Mom to Nicole- born 01/06/07 with LCDH- diagnosed in utero at 18 wks. Has g-tube- reflux- eosinophilic esophagitis (EE)- and scoliosis- but one happy and busy toddler! http://i296.photobucket.com/albums/m...s/IMG_5502.jpg
It's doubtful I can attend this year
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
Once Ericka's birthday is over, I plan on starting to save. I really want to go. And, if for some reason I don't make it this year, then DEFINITELY next year!
Mommy to a Miracle: Ericka Elizabeth (3.18.2009)-LCDH diagnosed in utero at 29 weeks- Venitlator- Nitric Oxide- Repair surgery at 13 days- Venous Venous ECMO at 16 days- Venous Arterial ECMO at 21 days- came off ECMO at 36 days- off oxygen support at 84 days- G-tube surgery at 78 days- home at 100 days..FINALLY! I'm so proud of her and all the progress we have made! All meds and g-tube DC'd on May 5th- 2010. She's still a skinny minny but she's healthy and happy! She's amazing!
ERICKA'S JOURNEY: http://www.onetruemedia.com/shared?p...39&skin_id=801 www.myspace.com/tracy_leigh