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Dawn, That is great news! When I joined the forums I read a little bit about what was going on (which was under a year ago now). Today when I saw the link on Facebook, I read through it and was amazed at how long of a process it was to get to this point.
Son went 5 yrs 11 months undiagnosed with CDH. Presented itself as stomach pains so bad he was doubled over in pain. Went to local ER where they gave him pain medication and took x-rays. Once x-rays were looked at was asked if he had x-rays taken at any other time (at 2yrs old- nothing was detected). We were transferred to Janet Weis Childrens Hospital in Danville- PA. Several x-rays and hours later he was taken to surgery. Diaphragm sewn shut and feeding tube placed to help keep stomach in place. Initial stay was 6 days- came home and feeding tube came out. Rushed back to Danville and they removed feeding tube and another 4 day stay to heal.
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