Lynne, who is that young man in the photos???? That cannot be our baby Baer, OMGosh!!!! He's grown so much!! Still adorable!!!
Lynne, who is that young man in the photos???? That cannot be our baby Baer, OMGosh!!!! He's grown so much!! Still adorable!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
BoH did indeed submit a letter to the USPTO TTAB. You can read it here:
http://ttabvue.uspto.gov/ttabvue/v?p...&pty=CAN&eno=2
It means she gives up rights to the trademark on "Congenital Diaphragmatic Hernia Awareness" so that means it's free again for everyone!
BUT she reserves the rights to it in case anyone else tries to trademark it (who else would do that???!!) and she claims all rights to any trademarks including that phrase, such as "Congenital Diaphragmatic Hernia Awareness DAY" (which she already owns).
And also to any future ones such as "Congenital Diaphragmatic Hernia Awareness T-Shirt" or "Congenital Diaphragmatic Hernia Awareness Walk" or "Congenital Diaphragmatic Hernia Awareness Fundraiser" or anything like that. She hasn't trademarked those but reserves her right to fight for ownership if anyone else does.
So as long as no one else tries to trademark those phrases, we should be ok.
CHERUBS will however NOT participate in CDH Awareness Day because it's trademarked and we don't want to deal with drama. Nor do we use turquoise because we don't support these drama either.
But anyone can now say "Congenital Diaphragmatic Hernia Awareness" without fear of her suing, threatening to sue or harras anyone. Which is all we wanted anyway - for CDH Awareness to be free for anyone to use.... because it does belong to ALL families, researchers and especially these babies.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
GOOD news!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Dawn, That is great news! When I joined the forums I read a little bit about what was going on (which was under a year ago now). Today when I saw the link on Facebook, I read through it and was amazed at how long of a process it was to get to this point.
Son went 5 yrs 11 months undiagnosed with CDH. Presented itself as stomach pains so bad he was doubled over in pain. Went to local ER where they gave him pain medication and took x-rays. Once x-rays were looked at was asked if he had x-rays taken at any other time (at 2yrs old- nothing was detected). We were transferred to Janet Weis Childrens Hospital in Danville- PA. Several x-rays and hours later he was taken to surgery. Diaphragm sewn shut and feeding tube placed to help keep stomach in place. Initial stay was 6 days- came home and feeding tube came out. Rushed back to Danville and they removed feeding tube and another 4 day stay to heal.
I hereby declare April 19, 2010 as "CDH Awareness Day" - as today it was
granted back to the people it truly belongs to - CDH families and
researchers!
http://ttabvue.uspto.gov/ttabvue/v?p...&pty=CAN&eno=2
As if I had any power to declare anything! LOL But still, it's a WONDERFUL day!!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
Dawn we thank you for all the effort you have put into this for each and everyone of us, and the memories of those we've lost.
Yes, it is a WONDERFUL day!!!
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Awesome!!!! All smiles over here!!!
Shana ~ Mom to Nyah-Lyn (05-31-2004) and Cherub Landon Matthew (06-20-200 Bilateral Diaphragmatic Eventration. Left side repaired @ 3 days old- Right side repaired @ 4 months old --> total hospital days = 42. He's our hero! http://i45.photobucket.com/albums/f8...bonSmall-3.jpg Landon's Journey: http://www.onetruemedia.com/shared?p...m_medium=email