We have the bill written, we just need sponsors to get it introduced.
By a show of hands, how many members are willing to write letters to your Congressmen and Representatives to help us get more funds for CDH Research?
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We have the bill written, we just need sponsors to get it introduced.
By a show of hands, how many members are willing to write letters to your Congressmen and Representatives to help us get more funds for CDH Research?
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I will definitely help write my congressmen and representatives!! Did you ever get a form letter/example to use??
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Me too!
I have written my Congressman for my district in Texas and have my mom and sister-in-law writing theirs for California and Alabama.
Yeah!!!!
http://www.cdhbills.org for letters to send.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
I printed out the info and will write to Patrick Murphy as soon as I can find the time. This weekend is kind of busy!
Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url
I wrote my ccngressman yesterday!
Mom to Kailee Mae Glover Aug 27- 2007 and Gwendolynn Leigh Glover Feb 02-2009 to Feb 26- 2009 Right sided CDH 1 surgery liver failure on ECMO for 23 days dialisis off and onfor 24 days. <a>http://lagf.lilypie.com/STdbm6.png</a> www.caringbridge.org/visit/gwendolynnglover
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