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We received our tote bag today. What a wonderful group of people you are. The kindness of that gesture means a lot to us. We our expecting our baby Cameran Summer (Cami) in July here in Hawaii. Thanks for the support as we prepare for this journey.
Mahalo,
The Estacio family
You are so welcome....Cameran is in our thoughts and prayers. Keep fighting Cameran!! (((HUGS))) to you and your family. (I posted on your other message, wondering if you had picked a name...beautiful name).
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
Awww...we love seeing posts like this from our members. Welcome to CHERUBS Estacio family! So glad you are enjoying your tote. I know so many members work very hard to collect those items. Update us when you can on your sweet Cami. Love the name...does it have a special meaning? Much love from the Green's in MD.
Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla (, Chloe ( 6 ) & Elodie ( 3 )
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