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Thread: $50 million CDH Research Bill Introduced on the Floor of the U.S. Senate today!!

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  1. #1
    Ditto what Tracy said!!!! This is something that is so quick and easy and only costs the price of a stamp!

    Please ask your Congressmen to support Senate Bill S.3396

    Go here to track the progress of the Bill - http://www.govtrack.us/congress/bills/112/s3396

    Look Up Your Congressmen To find his / her mailing address - http://www.house.gov/writerep/

    Download Letter to Send To Your Senator / Congressman - http://www.cdhbills.org/letter-cdhresearch.doc

    Include The CDH Research Bill and a photo of your cherub - http://www.gpo.gov/fdsys/pkg/BILLS-1...112s3396is.pdf

    Sign the CDH Research Bill petition and ask others to sign as well! - http://www.change.org/petitions/to-i...agmatic-hernia

    To do several of these things: Go to http://www.cdhbills.org/ and find your Senator's contact information. Call their offices, make an appt. At the least, you will speak to their health aide. Take a copy of the bill with you (also on the site). Take a photo of them and you and your cherub or your cherub's photo. Write up your cherub's story and how you are helping with this bill by asking for support. A one page story/press release. Then march into your local newspaper or TV station's office and ask to speak to a reporter. Tell them your story in person. Hand them the printed story (with your contact info) and your photo. You can use the letter template (on the site too) to help with the story paper if you need it. MOST IMPORTANT is talking to the Senator and/or Aide! We need their vote!!!!!! Then try the media. The worse the media can say is no.
    Attached Images Attached Images
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    Working on trying to get in for a meeting with Sen Merkley from here in Oregon as he is on the committee we have to get it through. I already have several folks interested in going if we can get a time. Keep your fingers crossed!
    Shelly Moore
    CHERUBS Oregon Representative and Oregon Hospital Angel
    CHERUBS Prayer Committee Member
    CHERUBS Parental Advisory Board Member (2013-2015)
    Email: oregon@cherubs-cdh.org
    Facebook: http://www.facebook.com/Teckiemom

    Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.

    Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.

    Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.

    Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.

    Remembering Jayden - A Family's Journey in Coping with Loss to CDH
    http://rememberingjayden.blogspot.com/

    Jayden's CDH Story 2/19/10 - 3/14/10
    http://www.youtube.com/watch?v=0fKsAsMS_ZA

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