Ditto what Tracy said!!!! This is something that is so quick and easy and only costs the price of a stamp!
Please ask your Congressmen to support Senate Bill S.3396
Go here to track the progress of the Bill - http://www.govtrack.us/congress/bills/112/s3396
Look Up Your Congressmen To find his / her mailing address - http://www.house.gov/writerep/
Download Letter to Send To Your Senator / Congressman - http://www.cdhbills.org/letter-cdhresearch.doc
Include The CDH Research Bill and a photo of your cherub - http://www.gpo.gov/fdsys/pkg/BILLS-1...112s3396is.pdf
Sign the CDH Research Bill petition and ask others to sign as well! - http://www.change.org/petitions/to-i...agmatic-hernia
To do several of these things: Go to http://www.cdhbills.org/ and find your Senator's contact information. Call their offices, make an appt. At the least, you will speak to their health aide. Take a copy of the bill with you (also on the site). Take a photo of them and you and your cherub or your cherub's photo. Write up your cherub's story and how you are helping with this bill by asking for support. A one page story/press release. Then march into your local newspaper or TV station's office and ask to speak to a reporter. Tell them your story in person. Hand them the printed story (with your contact info) and your photo. You can use the letter template (on the site too) to help with the story paper if you need it. MOST IMPORTANT is talking to the Senator and/or Aide! We need their vote!!!!!! Then try the media. The worse the media can say is no.