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Thread: 2 great Chicago area fundraisers!

  1. 12-05-2012, 01:38 AM #1
    NeilRubenstein
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    Lightbulb 2 great Chicago area fundraisers!

    There's so much going on right now for CHERUBS but we have a couple events in the Chicago as well:

    1. The Enter Stage Left Fundraiser - https://www.facebook.com/events/172375582908955/ - this event should be a lot of fun with music, food, and prizes. I hope to see you there.

    2. A toy drive to benifit Hope Children's Hospital in Oak Lawn, IL (southern Chicago suburb) - https://www.facebook.com/events/443257222405923/ (I am happy to gather toys and bring them to a drop off location just email me at nrubenstein@cherubs-cdh.org)

    Both great events!
    Neil Rubenstein has been married since 2003 to his wife, Amy. He has two CDH survivors. His 1st CDH survivor (Aidan) was born in June 2010 after being diagnosed at 37 weeks. Aidan had surgery to repair his hernia when he was 4 days old. His surgeon discovered at that time that Aidan had no diaphragm at all, all his organs were in his chest (except for his liver), his heart had been pushed to the left side by his stomach, and he had two spleens (apparently not uncommon). Even with all this, Aidan did not need ECMO and was only in the NICU for 29 days. Aidan had a follow-up procedure at 13 months old to close up an abdominal hernia that his surgeon created to give his organs room to grow once she moved them all back to their proper location in his abdomen. His second CDH survivor was born on September 10. Brody had his hernia repair at 3 days old. All of Brody's organs except his liver and stomach were in his chest and his hernia was repaired using a Gortex patch. He will need the same follow-up surgery at around 12 months as Aidan.
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  2. 12-05-2012, 11:17 AM #2
    Chris and TracyMeats
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    Thank you for sharing the info. with us!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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