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Thread: Financial Assistance for CDH families Still in the NICU

  1. #1

    Financial Assistance for CDH families Still in the NICU

    Are you a family who is currently in the hospital with your newborn cherub? Do you need financial assistance?

    Did you know that CHERUBS has a Financial Assistance Fund that can grant funds to families? Please e-mail the CPAB if you are in need at cpab@cherubs.org. We just ask for you to give us a little background on your cherub and situation. It is super easy and we are more than happy to help you out.

    We just ask that your cherub still be in the NICU and that you are a member of CHERUBS.

    If you have any questions, please email the CPAB, cpab@cherubs.org.
    Last edited by Chris and TracyMeats; 08-22-2016 at 04:03 PM. Reason: Update email address
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  2. #2
    Thank you for letting us know about this. I was unaware that this program existed.

  3. #3
    I think a mother in NC may be in need of financial assistance. I'll check with her.

  4. #4
    Thank you Lauren for looking into that.
    Mom to Kylee Freedom Green. 10/04/00 - 10/05/00. 3lbs 14 ozs. Born at 35 weeks via emergency cesarean due to massive polyhydramnios that was restricting Kylee’s growth. She had LSCDH Her stomach, chest, and small portions of her liver, had breached into the upper-chest. Kylee had other congenital anomalies including: multiple heart-defects, two-vessel cord, Trisomy-18, as well as an AV canal defect. After much research, we chose to deliver at St. Luke’s Episcopal Hospital in Houston, TX . As soon as they delivered her she was immediately transferred to the NICU/Neo-Natal team right at the adjoining Texas Children’s Hospital. Also mom to Trey ( 9 ), Skyla ( , Chloe ( 6 ) & Elodie ( 3 )

  5. #5
    Bumping this thread up.

    Are you a family who is currently in the hospital with your newborn cherub? Do you need financial assistance?

    Did you know that CHERUBS has a Financial Assistance Fund that can grant funds to families? Please e-mail the CPAB if you are in need at cpab@cherubs.org. We just ask for you to give us a little background on your cherub and situation. It is super easy and we are more than happy to help you out.

    We just ask that your cherub still be in the NICU and that you are a member of CHERUBS. If you are currently expecting, please send us an email once your little one has arrived.

    If you have any questions, please email the CPAB, cpab@cherubs.org.
    Last edited by Chris and TracyMeats; 08-22-2016 at 04:03 PM. Reason: update email address
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  6. #6
    Bumping this thread up again.

    The CPAB recently voted to make changes to our assistance program for families. We are currently adding families that are in the hospital undergoing in utero procedures to help save their CDH baby.

    Please e-mail the CPAB if you are in need at cpab@cherubs.org. We just ask for you to give us a little background on your cherub and situation. It is super easy and we are more than happy to help you out.

    We just ask that your cherub still be in the NICU and that you are a member of CHERUBS. If you are currently expecting and undergoing in utero procedures, please contact us.

    If you have any questions, please email the CPAB, cpab@cherubs.org.
    Last edited by Chris and TracyMeats; 08-22-2016 at 04:03 PM.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  7. #7
    We have changed how we do financial assistance grants. We now have an application the member must fill out and get signed by a social worker there at the hospital. Please email the CPAB at cpab@cherubs.org if you are in need of aid, tell us you are interested in the financial assistance grants and we can get the application out to you. Any questions please let the CPAB know.
    Last edited by Chris and TracyMeats; 08-22-2016 at 04:04 PM. Reason: edit email address
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  8. #8
    At this time, the charity is not able to assist families financially. The financial assistance fund is low and we are in need of donations earmarked for family support to be able to offer help financially to parents. If you are in the following states seeking CDH care, please let us know (cpab@cherubs.org) and I can put you in touch with an ACDHO charity that may be able to help: Virginia, West Virginia, Ohio, New York, Maryland, New Jersey, Delaware and Pennsylvania.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

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