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Thread: CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

  1. #1

    CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

    Join us as we celebrate our charity's 20th year by sailing the seas!

    CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

    August 23 - 29, 2015

    Sailing from Miami to Cozumel, Jamaica and Grand Cayman

    Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!

    8/23/15 sailing of the brand new Carnival Breeze!- 6 night sailing arrives back on 8/29/15. Leaves from the port of Miami and visits, Jamaica, Grand Cayman and Cozumel with 3 days at sea.

    More information can be found at http://www.cherubs-cdh.org/about/new...reunion-cruise
    Attached Images Attached Images
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  2. #2
    If you have the chance to attend one of our CDH conferences, please do so!! They are so educational and a place to talk with others that have been affected by CDH. There are many angel families as well as survivor families in attendance. The people you meet become friends. The things you learn from the CDH researchers is wonderful and they are there to listen to your questions as well.

    There will be a doctor the entire time on the cruise if you are worried about that with your cherub coming. Dr. Kays will be there on board.

    If you have any questions, please ask.

    We are going big for our 20th year in existence as a charity and we look forward to sharing it with all of you!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  3. #3
    I've been in contact with Susie the travel agent and priced a week in Disney before the cruise . We are so looking forward to attending the 20th Anniversary Conference . Wow 20 years ! I hope we get lots of attendees and we are sure to have a fabulous Conference and Celebration of the 20th Anniversary

  4. #4
    Can't wait!!!
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member

    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org

  5. #5
    So who's all going?
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member

    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org

  6. #6
    Sounds great!! How late can we sign up? My husband and I are planning to ttc again in the early spring. i know they don't like pregnant women to go on cruises after around 24 weeks so I think we'll have to wait to see what happens first.
    Monica- Mom of Sammy 8/20/14-9/1/14. Sammy is our first child. LCDH diagnosed at 19 weeks. ECMO, dialysis, EEG, two circuit changes for ECMO. Sammy was surrounded by family and knew he was loved. He looked exactly like my husband! Missing my little Sammy every day.

  7. #7
    Definitely looking into this!!
    Parents to Tman (1/20/2009), Miss L (7/11/2011), and our CDH CHERUB Ray James (11/13/2013), diagnosed with posterior RCDH at 22 weeks/confirmed at 24 weeks. He was born at 39w3days gestation at Yale-New Haven Children's Hospital. He was placed on ECMO at 30 hours old, had repair surgery while on ECMO at 12 days old (most of his own tissue was used and a quarter-sized gortex patch for the remainder), ECMO removed at 13 days old, and ultimately spent 7 weeks in the NNICU. He came home still dealing with pulmonary hypertension, delayed gastric emptying, and severe reflux, but was breathing room air and bottle feeding! Ray has been hospitalized 4 times since coming home; 1st at 6 months old due to bronchiolitis caused by the common cold virus, 2nd and 3rd for an upper GI bleed caused by a milk protein sensitivity (eosinophilic gastritis which is not necessarily related to CDH), and 4th was at 13 months old for small bowel obstruction caused by scar tissue from his repair surgery. He is now completely med free! Looking at him, you wouldn't even know all that he's gone through...
    You can read his story on FB, "Baby Ray James Heal - Our CDH Journey" https://www.facebook.com/groups/5944...=group_comment

  8. #8
    Monica, here is the link with all the info. http://www.cherubs-cdh.org/about/new...reunion-cruise
    I copied and pasted some of the info below.


    CHERUBS 20th Anniversary Reunion Cruise
    Join us as we celebrate our charity's 20th year by sailing the seas! Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!



    Join us as we celebrate our charity's 20th year by sailing the seas!







    CHERUBS 20th Anniversary Reunion Cruise & CDH Conference

    August 23 - 29, 2015

    Sailing from Miami to Cozumel, Jamaica and Grand Cayman



    Our charity is celebrating 20 years of serving the CDH Community by traveling the Caribbean and combining our annual CDH conference and luxury family vacation opportunities into an affordable, informative, supportive and FUN 20th Anniversary Reunion!

    8/23/15 sailing of the brand new Carnival Breeze!- 6 night sailing arrives back on 8/29/15. Leaves from the port of Miami and visits, Jamaica, Grand Cayman and Cozumel with 3 days at sea.

    Register here!

    Make a splash with Carnival cruises to Cozumel, a Caribbean island perched atop a coral reef. Cruises to Cozumel, Mexico, dock at the island’s heart—just minutes from San Miguel’s seafront shops and the white sand beach at Chankanaab National Park. Drift among star corals and sea fans on a Cozumel diving excursion or simply kick back on the beach beneath your own palm palapa as the turquoise waves roll in. Cruise to Cozumel for a scuba diving adventure along the Great Mesoamerican Reef. Enjoy a leisurely day of snorkeling with iridescent fish at Chankanaab National Park. Swim with dolphins at Dolphinaris.


    Cruise to Jamaica to discover the historic charms of this former sugar boomtown. The plantation days of Falmouth, Jamaica, are gone, but what remains is the largest collection of intact colonial Georgian architecture in the Caribbean, set on sand-dusted streets and a wind-swept harbor. On Carnival cruises to Falmouth, Jamaica you can kick back on a crescent of white-sand beach and explore the great houses of old sugar plantations. Visit Falmouth’s quaint 18th-century waterfront village. Feel the rush of flowing water in Dunn’s River Falls. Kick back at the ultimate beach bar, Time ‘n’ Place. Swim in the turquoise seas at Jacob Taylor Beach when you cruise to Falmouth. Explore Jamaica’s sugar plantation past at Good Hope Plantation House.



    Enjoy laidback British civility in a sun-splashed tropical locale on your Carnival® Grand Cayman cruise. Don’t let the island’s scrubland terrain fool you—a spectacular marine paradise lies just offshore of Grand Cayman, Cayman Islands, where a living undersea wall drops dramatically into the ocean deep. Cruises to Grand Cayman bring you directly to the best scuba diving and snorkeling in the kaleidoscopic Caribbean Sea. Stretch out on the glimmering white sands at Seven Mile Beach. Stroll the shops, cafes, and museums in George Town, Grand Cayman. Swim with gentle stingrays in Stingray City on your Grand Cayman cruise. Dive in the wondrous undersea world along the Cayman Wall. Spot native parrots and lizards in the Queen Elizabeth II Botanic Park.



    Pricing:

    For 2 people in a cabin; Inside- $1273.06, Balcony- $1773.06

    For 3 people in a cabin; Inside- $1619.59, Balcony- $2119.59

    For 4 people in a cabin; Inside- $1906.12, Balcony- $2526.12

    Pricing includes conference and cruise, all taxes and port charges. Pricing does not include optional excursions and add-ons. Insurance is not included and may be purchased at $79.00 per adult and $49 per child. Tips are extra and may be paid on the ship or prepaid if you prefer. Recommended tip is $11.50 per person per day (which is $69 per person for the trip). If you need air, a hotel the night before/after that is additional and I can help you with that.

    There is an initial deposit of $35 per person due to hold each person's berth in the cabin. That is due immediately upon registration to hold the cabin.

    Full (non-refundable) deposit of $250 per person is due on 3/27/15 or before. The remaining balance is due on 6/09/2015. This will go through our event planner, Susie. Please contact her with any questions about the ship.

    Register here!

    To make the deposit call Susie Kay, ACC at Piece of Cake Travel at 919-696-3007. I can also be reached at pieceofcaketravel@gmail.com for any additional questions you may have.



    About The CDH Family Conference:

    • Expect to learn a lot about Congenital Diaphragmatic Hernia!
    • Our guestspeakers are always the best in their fields, bringing us new information every year!
    • ALL CHERUBS families are welcome to attend! This includes families of survivors, grieving families and expectant families.
    • Our conferences include family introductions, round-table discussions, research guest lectures, Q&A sessions and much more!
    • Each conference is broken into sections; CDH Research, CDH Awareness and CDH Support
    • CHERUBS conferences are planned to be educational, supportive and affordable!
    • Our conference hotels always include breakfasts. The cruise includes all meals!
    • Attendance this year includes a free conference t-shirt.
    • Meet new friends, see old friends and participate in research for various hospitals.
    • Our conference will be held on sailing half-days so that families can enjoy shore excursions.
    • Children are welcome but babysitting is not provided by the charity. The ship offers some child entertainment but you are responsible for your children.
    • Our cruise will include CDH surgeons and helicopter travel access in case of emergency.
    • We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
    • Join in our balloon releases / bubbles at every conference!
    • We have a pizza party on the first night of every conference.
    • Kids get a chance to learn the CDH kids song and perform on the last day of the conference.
    • For safety and privacy of our members, you MUST be a member of CHERUBS (in good standing) to attend. You may register for free at http://www.cdhboards.org
    • Many families of survivors are eligible for grants to cover travel expenses to medical conferences. Ask your child's social worker for more information.

    2015 Guest Speakers:
    David Kays, MD - University of Florida in Gainesville at Shands for Kids

    Julia Wynn, MS - DHREAMS / Columbia Presbyterian

    Frances High, MD - Mass General Hospital CDH Genetic Study





    Carnival Breeze
    Carnival Breeze — Miami’s hottest destination — sails toward islandy hotspots across the Caribbean. Fun-fan favorites like SportSquare and mouth-watering dining spots like Cucina del Capitano are just the beginning of how Carnival Breeze keeps the fun blazing.

    Enjoy the island atmosphere of RedFrog Rum Bar, or south-of-the-border taco goodness at BlueIguana Cantina. There’s family fun (and games) at Hasbro, The Game Show and ha-ha hilarity at the Punchliner Comedy Club Presented by George Lopez. Let’s not forget Guy's Burger Joint, which features signature, hot-off-the-grill burgers designed by celebrity chef Guy Fieri! There are many fish in the sea, and you'll find a nice selection of them at Bonsai Sushi.





    http://secure.carnival.com/cruise-food/?shipCode=BR


    Carnival Breeze has the whole family covered — with water, that is — with a 320-foot-long Twister Waterslide at Carnival WaterWorks. Just for the kids there’s supervised youth programs like Camp Carnival and Club O2. And for the bigger people, there’s just-me-time to be had relaxing at Serenity Adult Only Retreat… after you pamper yourself at Cloud 9 Spa, of course. Then for fun after the sun’s done, have a truly moving experience at the multi-dimensional Thrill Theater, dance in your seat at Playlist Productions… or if you prefer to do your dancing on a dance floor, check out Liquid Nightclub.




    http://secure.carnival.com/onboard/v...s/?shipCode=BR



    http://secure.carnival.com/onboard/v...s/?shipCode=BR



    http://secure.carnival.com/onboard/v...s/?shipCode=BR



    If you notice a bit of the outdoors inside, don’t adjust your view. Carnival Breeze’s staterooms — and many of the public spaces around the ship — feature a scintillating tropical décor and contemporary furnishings that’ll transport you straight to warm Caribbean bliss.



    http://secure.carnival.com/cruise-sh...l-breeze.aspx#





    http://secure.carnival.com/cruise-sh...al-breeze.aspx



    Register here!
    Felecia Marie Woodruff- CHERUBS Volunteer
    Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member

    Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
    21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
    Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
    My Facebook page: https://www.facebook.com/felecia.woodruff
    Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org

  9. #9
    Let us know if you have questions on this year's CDH conference at sea!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org

  10. #10
    Jealous of all those going! Have fun!
    Mom to Brooke-3/22/04- Braden-3/13/08-RCDH diagnosed at birth- treated at CHOP- CDH repair at 1 day old- home on day 12- Orchiopexy for undescended testicle (4/13/09)- Myringotomy with tubes bilateral (ear tube surgery-7/6/10)
    North Carolina State Co-Rep http://i291.photobucket.com/albums/l...bon-braden.jpg Braden's video http://www.onetruemedia.com/shared?p...edium=text_url

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