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Our granddaughter Jada Will passed away 02/13/2015. Her smiling beautiful face will never be forgotten. She showed strength and her courageous battle for life lasted 16 month's of hospitals and medical aassistants. We nevertheless feel blessed by knowing her, and Pray for the understanding of why so many children are affected by CDH.
Beckie, I am so very sorry for your loss of Jada. (((HUGS)))
Praying for you and your family.
Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
email: tmeats@cherubs-cdh.org
I'm so very sorry. Praying for your family.
Felecia Marie Woodruff- CHERUBS Volunteer
Pennsylvania State Representative, Awareness Committee Leader, Parent Advisory Board Member
Daughter, Hayden, DOB October 8th, 2009. CHERUB SURVIVOR son, Bryson, DOB July 30th, 2012 born at The Children's Hospital of Philadelphia.
21 Days ECMO, 6 Days Oscillator Ventilator, Day 32 CDH Surgery, Day 35 Got to hold him for the 1st time, 25 Days Conventional Ventilator plus 21 Days while on ECMO, 4 Days CPAP, 17 Days Nasal Cannulas, Day 90 Came Home from the NICU
Bryson's Facebook page: www.facebook.com/brysonsbattleprayerpage
My Facebook page: https://www.facebook.com/felecia.woodruff
Email: fwoodruff@cherubs-cdh.org | awareness@cherubs-cdh.org
Beckie I am devistated to read this((hugs))
Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/
I'm so sad to read this, Jada will always live on in your hearts.Sending prayers for you Beckie and all of Jada's family.
Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
We are so sorry to hear Jada has joined her fellow angels. We pray they were all at Heaven's gate welcoming her as she arrived. Our deepest sympathies to your family as you all walk though these difficult days ahead... :'(
Shelly Moore
Shelly Moore
CHERUBS Oregon Representative and Oregon Hospital Angel
CHERUBS Prayer Committee Member
CHERUBS Parental Advisory Board Member (2013-2015)
Email: oregon@cherubs-cdh.org
Facebook: http://www.facebook.com/Teckiemom
Grandmother to cherub angel Jayden, the only son to my born to youngest daughter, Alicia.
Jayden was diagnosed with CDH at his 17 week ultrasound with severe LCDH, stomach, intestines up as well as having polycystic kidneys. He was born February 19, 2010 at 36 weeks gestation.
Jayden spent 7 days on ECMO after which he was working on gaining strength for surgery when his polycystic kidneys started failing at about day 15, totally failing by day 19.
Jayden spent 4 days on dialysis before gaining his wings on March 14, 2010 at age 23 days.
Remembering Jayden - A Family's Journey in Coping with Loss to CDH
http://rememberingjayden.blogspot.com/
Jayden's CDH Story 2/19/10 - 3/14/10
http://www.youtube.com/watch?v=0fKsAsMS_ZA
Prayers from CA. Fly high sweet Cherubs, Fly high!
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