Like I said I missed the begining and had class last night and work this morning. My parents don't have DVR. Is my house ready to be moved in to yet?!? I miss my DVR!!
Like I said I missed the begining and had class last night and work this morning. My parents don't have DVR. Is my house ready to be moved in to yet?!? I miss my DVR!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Well, not that we'd wish CDH on anyone but there is a celebrity in the U.S. who had a CDH baby and I've been talking with her manager this week to see if she wants to be our CHERUBS spokesperson. I shant post a name yet because well, we have issues with well, you know who, and we don't want this sabotaged (and if you know who - either the celebrity or the person who would try to sabotage it - please don't post either). I'll let you all know who once it's official! Say some prayers!!!
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
That is great news that there is a celebrity who has had a baby with CDH especially if he/she would be a spokesperson NOT that im glad that this person has had a CDH baby though just that it would help with awareness.
Hopefully he/she will help us with awareness
[url=http://counters.families.com][img]http://tac.families.com/cb/205944.png[/img][/url] [URL=http://img529.imageshack.us/my.php?image=cdhawarenessribbonjacobpf0.jpg][img]http://img529.imageshack.us/img529/1527/cdhawarenessribbonjacobpf0.th.jpg[/img][/URL] [url]http://jacob-ogilvie.memory-of.com/[/url]
Dawn-that would be great to have a celebrity as a CHERUBS spokesperson.
Is this celebrity a member of CHERUBS now? I am sorry that he/she has had to deal with CDH--but this would be fantastic to have him/her help to spread CDH Awareness.
Now I am wondering what this celebrity situation is---can you share a little with us?!?!? just the situation part!!!!!
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Ashley- I do have one copy of the Infants fight for life.
I would love to send you a copy. Do you have a VCR? or should I try and get it taped to a DVD?
If anyone else would like a copy---please let me know and I will get a count up and have some made and send them out.
I will go to the Video store next week sometime.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Ashley, it's Discovery Health.
Dawn, you do such a wonderful job! I am glad to see you have found a celebrity spokesperson! Also, sadden we have to share CDH with them. I will be keeping my fingers crossed I would not have even known where to start for that one!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
WHO IS THIS CELEBRITY?????????
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
I found a British celebrity.... I don't think it's the one Dawn is talking about ....
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/
You found one too, to be the spokesperson?!? This is just great!! I am afraid to right to the media about Shannon. Last October, I wrote every newspaper and news channel in my area twice, and they never responded. I am not sure how many people really want to here stories with not so happy endings.
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Oh no... not to be the spokesperson... I just did a google search and found a British soap opera actress who lost her CDH baby at a year old... so sad... I don't know if she even knows about CHERUBS....
Cristin Mama to Graham- RCDH diagnosed at birth. ECMO x2 19 days total- left nephrectomy- two brain bleeds- developmental delays- profound hearing loss- still tube fed but learning to eat!! Mama to Dottie born 02/23/07 big fat healthy baby who LOVES her brother!! www.caringbridge.org/ma/grahamrussell http://cdhmomma.blogspot.com/